Pubdate: Wed, 05 Nov 2003 Source: Kelowna Capital News (CN BC) Copyright: 2003, West Partners Publishing Ltd. Contact: http://www.kelownacapnews.com/ Details: http://www.mapinc.org/media/1294 Author: John McDonald Bookmark: http://www.mapinc.org/heroin.htm (Heroin) RARE FATAL DISEASE TIED TO HEROIN Neurologists report second case of leucoencephalopathy in Kelowna, a disease with a 50 per cent fatality rate. A second case of leucoencephalopathy possibly connected to the smoking of heroin is suspected in Kelowna. The Capital News first reported in May that a young Kelowna woman was suffering from the neurological condition and was being treated in Kelowna General Hospital. That young woman died in July and another possible case has since come to the attention of neurologists. "This is the second person in town that we are aware of," confirmed Dr. Barry Jones. "They have the same background and personal history." That patient is one of at least 20 reported since 2002, including 16 so far this year. Most of the cases are confined to the Lower Mainland but have shown up in people from 19 to 51 from within various racial groups. Almost 50 per cent of those patients have died from the condition and Jones said the prognosis for recovery is low. Smoking heroin from tinfoil is a practice known as chasing the dragon. Leucoencephalopathy is a brain-wasting disease that causes victims to lose their sense of balance, have difficulty speaking and experience muscle weakness. Victims may also behave inappropriately or be unaware of their surroundings. The provincial medical health officer Dr. Perry Kendall issued a province-wide alert to all neurologists last May about a connection between leucoencephalopathy and heroin use. Jones said no autopsy was performed on the woman who died in July although he has talked to the local coroner about the case. He theorizes there may be a genetic trigger amongst the victims to a toxin generated during the smoking process that predisposes them to the disease. "It might be something that long-term users have built up inside their bodies," he said. "The question we have is does the neurological deterioration continue after people are removed from exposure." One of the first signs of the disease is the loss of coordination. "They become clumsy. Eventually they can't feed themselves because they can't get the fork to their mouths," he said. "It really is dreadful. You have young people with nothing else wrong with them and they have this devastating neurological impairment." - --- MAP posted-by: Richard Lake