Pubdate: Fri, 14 May 2004 Source: Royal Gazette, The (Bermuda) Copyright: 2004 The Royal Gazette Ltd. Contact: http://www.theroyalgazette.com/ Details: http://www.mapinc.org/media/2103 Author: Heather Wood Bookmark: http://www.mapinc.org/mmj.htm (Cannabis, Medical) GIVE ME MY HEALING WEED, PLEADS LIVER DISEASE SUFFERER, 55 A PEMBROKE man battling serious liver disease has waited more than six weeks to learn whether his US doctor's recommendation, that he be given marijuana to ease suffering caused by prescribed medications, will be supported under Bermuda law. The man was informed that his liver was pre-cirrhotic and then diagnosed with Hepatitis C, around 18 months ago. The diagnosis should have come nearly ten years earlier, the man declared yesterday. He said that blood he donated because his sister was ill was discarded by King Edward VII Memorial Hospital (KEMH) as unfit for use. Instead of following protocol and informing the man's doctor or the Health Department, the hospital allegedly did nothing. Today, however, the man's sole pursuit is his doctor's pain prescription necessitated by a regular diet of powerful medications =AD an injection once a week and six doses of the chemical Ribavirin every day in pill form. "The side effects of Hepatitis C are extremely bad =AD nausea, loss of appetite, mood swings, homicidal tendencies, suicidal tendencies =AD so we're talking about some pretty powerful medications," he explained. "I have to rotate the injections over my entire body because it takes almost two weeks for the inflammation to reduce; I was told by the doctor that six doses of Ribavirin would kill most people. It has caused anaemia in me, one of the expected symptoms, but I'm treating that with Procarin. "I was doing really well. Most of the other patients look like scarecrows and my doctor in Boston couldn't figure out why I wasn't losing weight, why I responded so well to the treatment, why I wasn't sick all the time, why I have never, ever thrown up one of my medications =AD all of which are unheard of. "The reason was because I was smoking marijuana. I can't eat unless I have a joint first. If I don't smoke, the most I can get down is the new dark chocolate Bounty bar but it certainly won't help to maintain my health. "But, the doctor told me that because of international ramifications, he couldn't possibly write me a marijuana prescription because I would have to carry it internationally which would make him a supplier." A request made for a prescription to his local physician, Dr. Janice Hetzel, did not prove any more helpful to the 55 year old. "She said she could understand how the marijuana would help me in my situation because it does take away all of my symptoms, but she didn't feel comfortable prescribing it for me. That blew my socks off. I thought a doctor's first thought was their patient's comfort or discomfort, not their own. "And I found Dr. Hetzel to be a doctor of some stature, in my opinion. She seems very, very good at what she does. But I found out the reason that she was uncomfortable is that by prescribing marijuana she opens herself up to potential arrest." Not content to sit and suffer, the man solicited a lawyer's advice and then contacted Government's Chief Medical Officer, Dr. John Cann. "Dr. Cann could just write me a medical prescription for marijuana if he wanted to. But he told me he was hesitant, that he would need to write to the Attorney General (Larry Mussenden) for clarification. That was about six weeks ago. I assume that Dr. Cann and the Attorney General =AD if they have indeed been communicating =AD are hoping that I'll just go away quietly or die." Subsequent calls to Dr. Cann brought a stream of similar responses, the man said: " 'He's not here' or 'He's unavailable' or 'We're still waiting for an answer from the Attorney General'. "Dr. Hetzel is upset that she's been put in this position. I think she's one of those great doctors. Not just good. Great. And why should I be put in a position of being a criminal? I have a letter from the doctor in Boston asking Dr. Hetzel if she could give me a prescription for marijuana because he's sure it's helping. I've got Dr. Hetzel saying it would help. "And I've got Dr. Cann sitting on his can in Bermuda who doesn't care whether I get help or not. I don't have time to walk softly." Doubt over his present condition or suffering or his doctor's credentials was not the cause for the delay, the man said. He has had his blood examined at a local laboratory, at KEMH and at labs overseas. And Dr. Michael Curry is a respected physician =AD a director of Hepatology at Boston's Beth Israel Deaconess Medical Centre and an instructor at Harvard Medical School. "It's not like he's a quack." When contacted yesterday, Dr. Cann said he was aware of the man's plight and indeed "empathised" with it, but he could not break the law. He said the man had been offered medicinal marijuana =AD a man-made product which includes an ingredient found in the drug known to bring relief =AD but had found it to be an inadequate remedy for his pain. "He had a clear answer from the Health Department that I have no authority to authorise him to use natural marijuana. I do have the authority to authorise him to use marijuana that comes in the medical form. "I did offer to explore, further, to be absolutely certain whether there could be legal authority for him to use marijuana in a natural form. And that process has not been completed. I would be able to issue a certificate for the medical form, but he's already tried that and feels that does not work for him. "While I might empathise with him I still cannot step outside of the legal bounds. I can't break the law to help someone else." The Bermudian said he contracted Hepatitis C some time during the 1970s but wasn't diagnosed until he changed his family physician of 30 years a year-and-a-half ago. "I was in New York City hanging out with the hippies. And we experimented with a lot of things =AD sex, drugs and rock and roll =AD and we did a thorough experiment. "Anyway, I changed doctors and (Dr. Hetzel) noticed I had elevated enzyme levels in my blood. I would think that, for most Bermudian doctors, elevated enzyme levels wouldn't even set off a register. "Apparently, we're some of the heaviest drinking people on the planet. A tough admission but . . . it came back that my liver was pre-cirrhotic and they told me I had to stop drinking." A further series of tests discovered he'd been living with Hepatitis C for 30-odd years. It was then the man was recommended to Dr. Curry in Boston whom he continues to see every six to eight weeks. "I'm extremely lucky to be alive. If I hadn't changed doctors, if I hadn't switched . . . I was fortunate enough to find a North American to whom our blood levels didn't make sense. So she pursued. It took her two annual visits before she finally put it all together and sent me to a specialist in Bermuda, Dr. Suraia Barclay, who found out I had Hepatitis C." A local precedent for prescribing marijuana as a medicinal aid has already been set. According to the man, a family friend suffering from glaucoma during the 1960s and '70s received a prescription and was given the drug in the form of pre-rolled cigarettes. "That is before my time. I have no basis to confirm or deny that," said Dr. Cann. "While I might empathise with him I still cannot step outside of the legal bounds. I can't break the law to help someone else. "I really don't wish to go into the details, but the process has not been completed and that has been explained to him. He's asking me to authorise him to use a substance which is illegal in this country. So I have to be absolutely certain that there is a legal basis for that to happen. In my knowledge there is none." The man, however, insisted that a woman, Ina Cook, received a prescription for marijuana to combat the effects of her glaucoma. "I don't know if the law has changed," he said. "I don't know if it's just some Attorney General's ruling that my doctor can be interfered with. But I take really great umbrage at having some pencil pusher here telling my doctor how to treat her patient. "My doctor's an expert. I have no respect at all for the Attorney General and I don't feel he should be interfering in my life. And the fact that Dr. Cann sits around on his can waiting for something to happen, makes me not have a lot of faith in the Health Department. "Especially when you consider that, I think it was eight years ago, I went to the hospital for a blood test and they threw away my blood. The Bermuda Hospitals Board didn't inform my doctor. They didn't inform the Health Department. They didn't inform anybody. That's against the law. "And because they didn't do their job and let me know I had a problem with my liver, I drank probably 50 cases of rum over the years (that I would not have, had I known)." - --- MAP posted-by: Josh