Pubdate: Sun, 02 Jun 2013
Source: Union City Reporter (NJ)
Copyright: 2013 Union City Reporter
Contact:  http://www.unioncityreporter.com/pages/union_city
Details: http://www.mapinc.org/media/4474
Author: E. Assata Wright

UP IN SMOKE

HARD TO GET -- Patients are waiting a year or more to get marijuana 
for medical purposes. Some can't get it at all.

"At this point, I've given up. I've given up any hope of getting help 
from the state through legal channels. I'll just get what my wife 
needs illegally."

The Jersey City resident, who did not want to be identified, spoke 
these words from a waiting room last week at Memorial Sloan-Kettering 
Cancer Center, where his wife was undergoing her second round of chemotherapy.

On Nov. 15, just days after Hurricane Sandy and barely two weeks 
before Thanksgiving, this resident's wife was diagnosed with 
peritoneal cancer, a rare form of the disease that affects the thin 
tissue that lines the abdominal organs.

Unable to undergo surgery immediately, her doctors first tried to 
shrink her tumors with a nine-session round of chemotherapy that 
would then be followed with surgery and a second round of 
cancer-fighting drugs.

This course of treatment proved brutal and debilitating. Almost 
immediately, her husband said recently, her weight dropped from about 
107 pounds to about 97. She was nauseous and unable to eat.

"I was getting concerned because, of course, all of this was going to 
be followed by surgery and we had to be sure she would be strong 
enough to go through with that," said her husband.

After researching their options, he decided that he would try to get 
his wife certified under New Jersey's Medical Marijuana Program to 
receive a prescription of pot. This, he thought, would reduce her 
nausea, build up her appetite, and help her regain some of the weight 
she had lost.

By law, his wife was required to "develop an ongoing relationship" 
with a doctor who specializes in palliative care. This relationship 
must be established over the course of four in-person appointments, 
which this couple did with palliative specialist Dr. Perry Stein of 
Montclair. Since medical insurance won't cover such experimental 
treatment, the couple had to pay for these appointments 
out-of-pocket, according to the husband.

"That first appointment was 175 bucks. After that, the appointments 
were 100 bucks each. We then had to pay to get fingerprinted. And 
that was, like, $75."

'I was trying to do this thing right'

Shortly thereafter, his wife received an account number and they were 
optimistic that she would soon be able to get a prescription.

She didn't.

The state required both of them to get identification cards that cost 
$205.40 each. By law, his wife is required to have an ID card as the 
patient, and he is required to have one as her caretaker.

"Here we are, we've spent all this money out of pocket, but my wife 
has yet to receive a medical marijuana prescription," he said. "I 
mean, it's not like I can't get some pot the illegal way. But I was 
trying to do this thing right. I was trying to do it legally, doing 
it the way the laws of New Jersey say you're supposed to. But I feel 
like we've just been scammed and robbed. And what's worse, we were 
scammed and robbed by our own state."

Since all of the payments that were made were done using a credit 
card, he is now in the process, he said, of getting some of his money 
reimbursed under the argument that he did not get the service he had paid for.

As his wife continues her second round of chemo, she is still dealing 
with severe nausea and has not regained much weight since her diagnosis.

If recent news accounts are anything to go by, this couple's 
experience with New Jersey's Medical Marijuana Program is fairly typical.

Passed in 2009 just before Gov. Christopher Christie took office, New 
Jersey's Medical Marijuana Program received bipartisan support from 
state lawmakers who believed the law would help people with severe 
life-threatening and debilitating diseases like cancer, ALS, 
HIV-AIDS, and other conditions.

But in the past month several patients who were supposed to be helped 
by the law have been speaking out about their experiences ever since 
Christie told reporters during a March press conference there was "no 
crisis" in the Medical Marijuana Program. Yet, waiting lists are 
months long for a prescription.

Part of the problem is that there is only one "compassionate care 
center" that has so far received final approval from the state to 
offer marijuana prescriptions. That center, the Greenleaf 
Compassionate Care Center in Montclair, has assisted 114 patients 
since it opened in December, according to The Star-Ledger.

The operators of Greenleaf did not respond to several e-mails and 
phone calls seeking comment regarding their waiting lists.

A separate center, Foundation Harmony, which was slated to open in 
Secaucus, has yet to receive its final certification from the state 
to open and begin operating.

"It's been very frustrating for patients," said Ken Wolski, CEO of 
the New Jersey chapter of the Coalition for Medical Marijuana, who is 
also a registered nurse. "We've heard terrible stories of people 
jumping through hoops to get registered and getting an ID card, but 
then not being able to get marijuana to treat their symptoms. And 
many of these people are just suffering needlessly."

A spokesperson for the Department of Health and Human Services did 
not return two phone calls seeking comment.

Christie has defended the state's program by saying that he wants to 
avoid some of the problems other states have had. Arizona has had 
confidentiality problems, and there has been some confusion around 
who can and cannot grow medical marijuana at home under Arizona's 
medical marijuana law.

An audit of Colorado's medical marijuana program found that it took 
about 23 months for alternative care centers to be approved, but then 
once approved, some of the facilities were found to have information 
in their applications that should have disqualified them from approval.

Eighteen states currently have medical marijuana programs, according 
to Wolski, 12 of which allow approved and certified patients to grow 
their own marijuana for the purposes of medical use. A home 
cultivation provision was taken out of the New Jersey law in 2009.

"As soon as I saw the health department's regulations back in 2010, I 
knew this program was not going to work," said Wolski. "All of the 
[prescribed] marijuana has to come from six alternative treatment 
centers. These centers were given the go-ahead in March of 2011. But 
since they were selected by the health department, only one, 
Greenleaf, has been able to open. Some of the centers are having 
trouble getting their sites approved due to community opposition 
because they interfered with local zoning rules."

The vetting process is rigorous. All employees at the compassionate 
care centers -- even the most junior employees -- must fill out a 
60-page application. In some cases applicants have been rejects, 
according to Wolski, due to the past criminal conduct of relatives. 
This process, he added, has delayed most of the alternative treatment 
centers from opening their doors and serving the needs of sick patients.

"It's really a shame how this has turned out," said the Jersey City 
resident. "This is something that really would have been beneficial 
for my wife."
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MAP posted-by: Jay Bergstrom