Pubdate: Tue, 29 Jul 2014 Source: Ottawa Citizen (CN ON) Copyright: 2014 Postmedia Network Inc. Contact: http://www.canada.com/ottawacitizen/letters.html Website: http://www.ottawacitizen.com/ Details: http://www.mapinc.org/media/326 Author: Marie-Danielle Smith Page: A6 Bookmark: http://www.mapinc.org/find?323 (GW Pharmaceuticals) CANADA TRAILS OTHERS ON USE OF MARIJUANA-BASED EDIBLES Clinical Trials of Pot Products Needed Before Health Canada Will Allow Use Roll it. Light it. Smoke it. Vaporize it. But don't cook with it. Despite Canada's strides to regulate medical marijuana, in some ways, this country trails other jurisdictions. Parts of the United States and Israel have gone further in making cannabis products, such as oils and foods, legally available as medication. Under the Marihuana for Medical Purposes Regulations, the new regulatory framework implemented April 1, only dried marijuana that is smoked or vaporized has been approved for therapeutic use in Canada. However, some contend that for children and adults with asthma or lung problems who can't smoke or inhale vapour, derivative products are a better option. The obstacle? Clinical trials. Health Canada says the alternative cannabis products haven't gone through adequate testing. "Clinical trials represent the best mechanism through which patients can have access to drugs which have not yet been approved for general marketing in Canada," the department said in a statement. "Clinical trials ensure that the best interests of patients are protected and that the drug is administered in accordance with national and international ethical, medical, and scientific standards." Advocates put forward a number of arguments in favour of the alternatives. Ingesting marijuana-based products creates longer-lasting effects, because chemicals enter the bloodstream through the stomach rather than the lungs. People with chronic pain could eat food containing marijuana butter or oil throughout the day instead of smoking a joint every hour. Another factor is that chemical contents of derivative products such as tinctures or oils can be more accurately measured, making intake and dosage easier to control. For example, cannabis-based treatment for children with epilepsy requires a specific amount of CBD, a non-psychoactive component of cannabis, per kilogram of weight. Oils can be analyzed in a lab to ensure the correct dose is being administered. Marlene Freelan's 4 1/2-year-old granddaughter, Taylor, suffers from intractable epilepsy. The Toronto woman said if CBD rich oil was available it could be an option for the girl, whose epilepsy causes "drop" seizures up to five times an hour. The seizures cause Taylor to fall to the ground uncontrollably. She wears a helmet, and someone is with her at all times. She has a prescription for medical marijuana that her family would use to acquire the oil if it was legal, said Freelan, who is in contact with her local Conservative MP's office about the issue. Liberal health critic, MP Hedy Fry, said "the evidence is clear" that oil high in CBD can make a big difference for these kids. "There is absolutely no reason that the minister cannot allow this, if she understood or if she followed any kind of evidence-based health policy," said Fry. "This blows my mind." Skirting Health Canada regulations, as some users have taken to doing to make their own oil, is costly, she said. Many people can't afford to do this, let alone to purchase marijuana from commercial suppliers rather than being able to grow it in their backyards, she added. NDP health critic, MP Libby Davies, also contends the new regulations are too restrictive. "I just spoke with a woman the other day who is suffering from chronic pain and doesn't want to smoke. She's looking for help to find the right product to use," said Davies, adding her office receives calls about issues like these every week. "It causes great frustration." Davies cited Colorado, where oils high in CBD are legally used to treat epilepsy. There, and in California, an organization called the Realm of Caring distributes oil made from the "Charlotte's Web" strain of marijuana to parents of 437 epileptic children. More than 8,800 people are on a wait list for the service, including some Canadian families. Thirteen more U.S. states have either legalized possession of the oil or approved studies that could result in its legal prescription. The oil is also being used legally under Israel's medical marijuana laws. "We've fallen behind," said Davies. Toronto's Hospital for Sick Children receives regular inquiries from parents who want to use the cannabis oil treatment. But a lack of Health Canada-approved clinical trials vetting the products is a roadblock for the hospital. "There is insufficient scientific evidence to show that this treatment is effective," a spokeswoman for the hospital said. However, she added, SickKids is working toward developing a clinical trial in the future. A drug with properties similar to CBD-rich cannabis oil has received the U.S. Food and Drug Administration's "orphan drug" designation, allowing it to be used in clinical trials there. The drug, called Epidiolex and manufactured by Britain's GW Pharmaceuticals, derives CBD from marijuana plants and is free of THC, the other major chemical in marijuana that is typically associated with pain relief and produces a "high." The company announced results from early trials in June. It found that of 27 children with severe epilepsy treated with the drug over 12 weeks, a high proportion showed a greater-than-50 per cent reduction in seizure frequency. Some children were reported seizure-free at the end of the trial. A petition created last year by Pediatric Cannabis Canada got 11,703 signatures in favour of making CBD oil legally available. But political movement on the issue has been minimal. Ottawa's Mandy McKnight, who illegally treats her six-year-old, Liam, with cannabis oil to help control his Dravet syndrome seizures, said recently she is frustrated that her attempts to contact Health Canada and local and federal politicians have gone without reply. "It is very disappointing, very disappointing," she said. "It just seems to be that no one wanted to take an effort, to take it on. I don't get it." Health Canada said a drug manufacturer or other sponsor, such as SickKids or a physician, could propose a clinical trial for cannabis extracts by submitting a clinical trial application to Health Canada "at any time." But Adam Greenblatt, executive director of Montreal-based Medical Cannabis Access Society, said Health Canada is not taking a logical approach by treating marijuana the same way it does pharmaceutical drugs. "They're trying to cram a square piece into a round hole," he said. Greenblatt said his organization approached Health Canada with the idea of making a standardized cookie that would contain approximate amounts of THC and CBD, providing longer-lasting effects and making patients' intake easier to control. They told him, "You want to sell a cookie? Well, you've got to put your cookie through trials," he said. "I don't think they're opposed to these products but they want a product like that to be approved like a narcotic." Health Minister Rona Ambrose was not available for an interview with the Citizen. - --- MAP posted-by: Jay Bergstrom