Source: Washington Post (DC) Contact: http://washingtonpost.com/wp-srv/edit/letters/letterform.htm Website: http://www.washingtonpost.com/ Copyright: 1998 The Washington Post Company Pubdate: 19 Nov 1998 Author: Susan Okie HYPERACTIVITY LABELED 'MAJOR' PROBLEM Attention Deficit Disorder Is Diagnosed Inconsistently, Panel Says Attention deficit hyperactivity disorder (ADHD) is a "major public health problem," an expert panel concluded yesterday, and despite its increasing treatment with stimulants such as Ritalin, no one knows whether such drugs help sufferers in the long term. Children with ADHD typically are unusually active or easily distracted, have trouble focusing on schoolwork or completing assignments, and may be impulsive and accident-prone. Studies suggest between 3 percent and 5 percent of U.S. elementary-school children have ADHD -- as many as 2 million children -- but during the 1990s the number receiving Ritalin, amphetamines and other stimulants has almost tripled, raising concerns that doctors are too quick to make the diagnosis and prescribe such drugs. In addition, teenagers and adults are increasingly being treated for the disorder. The independent panel, after listening to two days of scientific presentations at the request of the National Institutes of Health, concluded that ADHD is inconsistently diagnosed and treated in different communities and that its true prevalence is unclear. The cause of the disorder is unknown, and some critics dispute its very existence. Some speakers at the conference offered evidence that ADHD is a genetic condition that leads to brain abnormalities while others called it a false label that stigmatizes children whose behavior is at one extreme of normal. Since there is no diagnostic test for ADHD, doctors must rely on information from parents and teachers and on observing a child's behavior. "Diagnosis is a mess," acknowledged Mark Vonnegut, a panel member. Nevertheless, the impact of ADHD on sufferers' lives "is profound," said University of Pittsburgh psychiatrist David J. Kupfer, the panel's chairman, "and necessitates much more attention than we have given it up to now." In addition to having severe problems in school, children with ADHD are often rejected by their peers and may have higher accident rates, the panel concluded. As adolescents, those ADHD sufferers who also have conduct problems are more likely to abuse drugs and engage in antisocial behavior. "For many individuals, the impact of ADHD continues into adulthood," the panel's report said. The greatest controversy surrounds the use of stimulants, including methylphenidate (Ritalin), amphetamines and pemoline, to treat ADHD. Most studies of their use have lasted three months or less, although recently a large, government-funded study compared drug treatment to psychosocial treatments (involving various efforts by parents and teachers to change children's behaviors) over 14 months. That study found that medications worked better than psychosocial treatments, and combining the two offered little added advantage. The studies suggest medications improve ADHD symptoms over the short term, making it easier for children to concentrate, and they appear to be safe when used carefully, the panel concluded. But their long-term impact is unknown. " . . . Stimulant treatments do not 'normalize' the entire range of behavior problems," the report said. "Of concern are the consistent findings that despite the improvement in core symptoms, there is little improvement in academic achievement or social skills." Panel members said that despite the need for further research, children with ADHD should receive access to the full range of treatments, which often involve mental health services and educational evaluations that are not covered by insurance. "The fact that the panel is not making a stronger statement is because we don't have data. That doesn't mean that children won't improve," said Janis Ferre, past chair of the Utah Governor's Council for People with Disabilities. Steven E. Hyman, director of the National Institute of Mental Health, which co-sponsored the conference, said he was troubled by the wide variations in treatment, including evidence that girls and African Americans with ADHD often are not diagnosed or treated. "For the kids most profoundly affected, the outcomes are quite poor," he said. "It's immoral not to provide a level playing field for all our children." - --- Checked-by: Mike Gogulski