Source: The New York Times Copyright: 1999 The New York Times Company Pubdate: Sat, 2 Jan 1999 Contact: http://forums.nytimes.com/comment/ Website: http://www.nytimes.com/ Author: N. R. Kleinfield ON PERMANENT PAROLE: A SPECIAL REPORT DAYS ON METHADONE, BOUND BY ITS LIFELINE Shortly after 9 A.M., Pamela Carlo arrived at the tiny, nondescript clinic in Chinatown for her daily deliverance. It was a cool day, with a packed gray sky. The tang of fish was in the air. She displayed her ID card at the check-in window, consulted the blackboard to see who had to give a urine sample (she didn't), then waited on the scuffed linoleum floor until her name finally crackled over the loudspeaker. At the third of four dispensing windows, a nurse proffered a plastic cup partly filled with the reddish liquid known as methadone. The nurse was required to watch her drink it. Ms. Carlo diluted it with water to mask the taste and swallowed it in three gulps, grimacing and stamping her right foot. "Oh, that's evil," she howled. "It never tastes any better." The nurses ask patients to say something, to insure they aren't "slagging," stowing the liquid in their mouths so they can sell it on the street. One man used to conceal a plastic bag in the hood of his sweatshirt; he would raise his cup past his ear and pour the methadone in. The nurses trust Ms. Carlo; in any event, she is rarely quiet for two seconds. "O.K.," she said. "That's that." Days on methadone begin like this -- this ordered, schoolmarmish protocol at the clinic window. The grinding privations of life on methadone are why the former heroin addicts who take it speak of being "tied by a rope" or "on permanent parole." They love the drug, and they hate it -- for the vise grip of its rules, and for its vise grip on them. Methadone frees, but it also imprisons. It is magical at blocking the yearning for heroin, but much less effective against the simple craving to get high. It is highly addictive in its own right, with fiendish withdrawal symptoms. At more than moderate doses, it can leave some patients in a barely functional daze. Methadone is one bridge to a new life, but there are many other rivers to cross. All of which helps to explain why methadone has long been caught in the crosscurrents of social policy, though never more so than right now in New York. Over the years, methadone has become the favored treatment for heroin addiction, and the Federal Government has lately pledged to make it more accessible. That view was endorsed by a recent report in The Journal of the American Medical Association, which said that methadone can help curb crime and reduce the spread of infectious diseases like AIDS. Mayor Rudolph W. Giuliani, on the other hand, has declared his desire to eliminate methadone-maintenance programs in New York and instead wean patients quickly to abstinence, though it is unclear how much power he has to do that. Like others scornful of methadone, the Mayor feels that addicts too weak to confront the pathology of their past are simply shedding an illegal habit for a legal one. Indeed, to many people in mainstream society, there is something unsavory and almost contemptible about methadone. But, in truth, few people uninvolved with it know much about it. And then there are the patients, for whom methadone is virtually an occupation. In the community of methadone users (population 115,000 nationwide, 36,000 in New York City, according to Federal and state officials), there is a continuum of dependence. On this day in the autumn of 1998, Pam Carlo occupied the vast middle; methadone allowed her to work on and off, but the employees at the clinic doubted she would ever leave it behind. Beth Griffin, a fellow patient, was almost weaned from methadone; she could already taste life on the other side. Jamil Muhammad continued to abuse drugs; he was what the clinic workers call a "resistant" patient, who requires great effort but gives little in return. Mostly, they were simply three people who took methadone to stop wanting heroin. They couldn't possibly untangle all the arguments. But they could illustrate something of the nuanced complexities of life on methadone, of what it can do and what it can't. As for the policy debate, each of their lives holds powerful arguments for both sides. Their weeks revolve around 46 and 62 East Broadway, the methadone treatment units of the Lower Eastside Service Center, a nonprofit substance abuse and mental health agency. One of the better regarded methadone programs, it offers a full array of counseling and detoxification services. And yet its aspirations are limited by the vagaries of addiction and methadone itself, by those who continue to take other drugs and who can't find a renewed life. The clinic would like people to achieve abstinence, but it imposes no time limit; many patients may be on methadone forever. The accent is on avoiding heroin, not graduating from methadone, an emphasis that sometimes frustrates patients who dearly hope to stop. Every social class is represented on methadone, but those low on the social index are predominant. About 30 percent of Lower Eastside's 950 clients work, and pay $2 to $56 a week, based on their income. The others, including Ms. Carlo, Ms. Griffin and Muhammad, are covered by Medicaid. No private insurer pays for methadone. About 65 percent of the patients are men; about 20 percent are H.I.V. positive. Roughly a quarter leave in the first year: they return to other drugs, are arrested or simply vanish. Ms. Carlo, Ms. Griffin and Muhammad lead lives that intersect on East Broadway and then radiate in very different directions. Methadone punctuates their days; it goes down in a gulp but seeps slowly into everything they do. Though they are not proud they are on it, they are persuaded of its necessity. "Society has made methadone into an evil, and that's tragic," Ms. Carlo said. "If Giuliani got rid of methadone, there would be tens of thousands of people on the street with guns in their hands." The Veteran: A Warm Glow For 20 Minutes Methadone's effect lingers for 24 to 36 hours, and Pam Carlo likes to take it soon after she awakens. Most patients do. Even before the clinic opens, there is a line outside. This is methadone rush hour. At first, she senses nothing. After about a half-hour, she feels no actual high but a sort of warm glow that endures for 20 minutes. Her speech slows. Otherwise, she is more or less her effusive, chatty, insouciant self. Ms. Carlo is one of methadone's elder stateswomen. She is 54, the last 28 on methadone. Even after all those years, she still feels like a specimen under glass. Methadone gives a lot, but it also takes a lot. There are many rules to being on methadone, perhaps the most tightly controlled drug in the nation. All methadone patients take it every day. Because of fears about diversion, patients, with few exceptions, must go to a clinic to get it. At Lower Eastside, one starts by visiting six days a week (the clinic is closed Sunday) and getting a take-home bottle on Saturday. This can fall to as little as one pickup a week (and six take-home bottles) if one has been on the program for three years, is working and has been "clean" from drugs for at least a year. (Pam Carlo goes three days a week.) Patients are forbidden to drink alcohol or use any other addictive drug. They are required to see a counselor at least once a month. Group therapy is mandatory at first, then voluntary. (Ms. Carlo skips it. "I've heard it all," she said.) A patient who goes out of town is limited to a two-week supply. Because of community anxiety, the clinic does not let clients loiter within a four-block radius. Habitual offenders can be dropped from the program, though few are. Pam Carlo did not linger. She and her fiancé, Earl Meares, headed east to his room in the Greenpoint section of Brooklyn. The sky hung low over the city. Meares will be husband No. 6. Ms. Carlo has had poor luck with husbands. One died of a heart attack and two of AIDS (by sheer luck, she never got the virus); the others were mistakes. Back at his room, they made themselves comfortable. They got out their artwork. She is a freelance commercial artist, and has been illustrating a book on mice. Meares, who is on workfare, sweeping up around the court buildings in TriBeCa, has been laboring on a comic strip called "Heroin Chic," based on Ms. Carlo's life. Meares has never had a drug habit. He doesn't fully understand addiction. She does. Her vision of drugs is dark. "See a sunny day like this?" she said. "I hated sunny days when I was using. I thought everything was so black. I thought there was no way out." She was born in Jamaica, Queens, an only child. Her mother lived off an inheritance. Her father, who was in the cemetery business, abandoned her mother for his secretary before Ms. Carlo was born. Growing up, she and her mother bickered constantly. "My mother hated everything that wasn't high class," she said. "And so I had to try everything that wasn't." She was smart, skipping two grades, starting college at 16 at Texas Western in El Paso. She felt too young, and drifted into the wrong crowd and into heroin. "When I found heroin, I thought it was what I was searching for my whole life," she said. "It was like drowning in a big black sea. And it was warm and comfortable and safe and nobody could touch me. I thought I had found God." A weekend thing evolved into a daily habit. She enrolled at Cornell University Medical College, she said, and met a doctor who was addicted to morphine. She moved in with him. She gave him sex; he gave her morphine. A year and a half short of graduation, she nodded out during a lab and collapsed onto a cadaver. She was suspended for using drugs. Furious, she sank into the shadows of the East Village and the unthinkable. Desperate to support her habit, she turned $10 tricks on the "day shift." She was a streetwalker for four years. She got just about anything you could get, including syphilis and jaw cancer. She shrank to 80 pounds and was less in demand. Homeless, she visited Woolworth's and bought a sign that read, "Bathroom Out of Order." At night, she trooped to the Albert Hotel in the West Village and affixed the sign to the door of a hallway bathroom. She arranged her fur coat in the bathtub, wiggled in and went to sleep. The next night, she chose a different bathroom. She did this for six months. In 1970, with no foreseeable future, she was drawn to a new treatment that was all the talk: methadone. "Methadone got me to feel again," she said. "We used to hear about the ring concept. People who are addicts, our lives are rings. There is a link that is either missing or improperly attached. With methadone, the ring is whole." Ms. Carlo drinks 66 milligrams a day. (The dose is determined by the patient's physical characteristics and the quantity and longevity of drug abuse.) Early on, her dosage was as high as 180. "I was wasted," she said. "I was walking into walls." Outside Meares's room, the sky had darkened. How did his fiancée's being on methadone affect him? "Sometimes she will take her dose and freeze in place." "Yes," she said quietly. "We'll go to the coffee shop and I'll reach for my tea and I'll just freeze in that position. Methadone freeze. It's embarrassing to him. I realize that." She does not like to discuss her condition. "I don't tell squares," she said. Once, visiting a friend of Meares, she slipped. She said she was on methadone. "His face froze," she said. "So did his wife's. Suddenly, disaster had struck. They had a junkie in the house." The ones who understand are her friends from the program. Methadone mornings, they get together at the Aten-Ra International Gourmet Deli, walking distance from the clinic. She sometimes refers to them by their names and doses: JoAnn, 60 milligrams; Tony, 8; James, 70, the size of the dose fixing them in the hierarchy of methadone. On a recent day, a couple of former members of the klatch tried to intrude but were ignored. They abused pills and were not welcome. James uses pills, too, but was down to half a pill a day from six, so he was O.K. "Anxiety," he said in explanation. Ms. Carlo said: "Anxiety problems are common for people on methadone. They have agoraphobia and claustrophobia. It's caused by their life styles." Pam Carlo has taken methadone for 28 years, 18 years longer than she took heroin. To an extent, she has made it a career. Chris DeLuca, the clinic's assistant director, doubts she will ever retire. She hopes he is wrong. "Before I die, I want to know what it feels like to be clean," she said. "You see, I don't remember. Imagine that: forgetting what it feels like to be straight. But I don't remember. And I want to feel it. I really do want to feel it." The Rule-Breaker: Admitting 'I'm Not A Prime Example' In the landscape of methadone are many people who straddle the world of drugs and the world of treatment, who continue to live by their own rules rather than methadone's. Jamil Muhammad is one of them. He is a lanky, hard-bitten man of 46, with a neatly trimmed beard and mustache. He has his own story of a defeated life, and he knows exactly where he stands. "I'm not a prime example of an addict who has gotten it together," he said. He went to Lower Eastside five years ago, and in every sense he got off to a bad start. At first his concept of being on the program meant to get his methadone and then take pills and shoot cocaine. He robbed apartments. He sold his methadone on the street. Several times, he ended up on Rikers Island. "I was crazy," he said. "Maybe I had a death wish." Addicts are used to being high, and once on methadone often gravitate to a substitute for heroin, generally cocaine or pills. Some pills combine with methadone to produce a euphoria. These days, the pill of choice is the sedative Xanax. "It makes you feel better with your meth," Muhammad explained. Methadone stops the thirst for heroin, but nothing more. Escape from addiction involves a protocol of methadone and counseling and ambition. Lower Eastside offers counselors and weekly group sessions to help resurrect aspirations, but patients take what they want, and sometimes it isn't much. Muhammad goes to group meetings with some regularity, but often sits there with a vacant look. "You have to deal with a lot of ignorance," he said. "I don't like it when someone starts running their mouth." He doesn't much like his counselor, either. The counselor, Anthony Badger, does nothing for him, he said. Badger said Muhammad had not accepted what had happened to him. "He tends to play people against people and put himself in the role of the victim," he said. Badger also said he had 56 patients. The state finances only one counselor for every 50. Badger said he monitored himself so he didn't burn out; he can do only so much. Over a burger at Rokka's Coffee Shop near the clinic, Muhammad gave a capsule version of his road to methadone. He was born in Orange, N.J., and raised mostly by his grandmother, who owned a prospering antique store. Talented at basketball, he received a scholarship to Providence College, but in his third year was caught dealing marijuana and expelled. He became a Muslim. He married and moved to Brooklyn. He went to Saudi Arabia and studied Arabic, hoping to teach it in American mosques. He had two sons. Back in Brooklyn, he taught Arabic for a while. He got hooked on pills and his marriage cracked apart. After the divorce, his descent was fast. "I was losing everybody," he said. "And so I turned to drugs." He snorted heroin and then he shot it, his life draining into his arm. He lived on the streets. He dealt heroin to make money to shoot it. He used it steadily for five years, as much as nine bags a day. In 1993, unable to support his habit, wanting to be useful again, he sought out methadone. These days, he tends to follow a cycle of being clean for several months, then taking cocaine or pills, then staying clean for several more months. Between August and the end of October, however, cocaine showed up in five consecutive urine samples. He was punished by having to show up five days a week instead of four. Even so, he drinks two or three cans of beer a day, in violation of clinic rules. "I have moments when I get frustrated at myself," he said. "Sometimes it gets so bad in my mind I feel like screaming. When I get disgusted, I'll go out and get high." Chris DeLuca said the clinic was highly permissive with patients who violated the rules. If you are caught selling your methadone or other drugs, you are generally dismissed, but the clinic grudgingly puts up with patients abusing drugs. Probably 30 percent do, DeLuca said. "We have a lot of patience because we found that if we kick them off, they go to another program or they go to the street and start shooting and sharing needles," he said. "We try to work with them on behavior modification. Sometimes this takes years. We can't succeed 100 percent." A flat, dull day. Muhammad was stacking books at the Angel Street Thrift Shop on West 17th Street. The Lower Eastside Service Center owns the shop and Muhammad works there three days a week, at $6 an hour. Mostly he waits for some stroke of luck, some act of legerdemain, to turn his world around. He had a lottery ticket in his pocket, banking on "587" to return him $500. He has played the same number for three years. It was the street address of a high school friend who was killed in a car accident on her prom night. His dosage is 100 milligrams, and it hasn't changed. Because of the stigma, he doesn't tell people about being on methadone, he says. "People have heard the stories about selling methadone and about still doing drugs." Of course, he still does drugs. Of course, he has sold his methadone. When he is broke, which is fairly often, he is tempted to sell it again. He can get $30 for a 100-milligram bottle, a lot when your pockets are empty. "I was tempted last week," he said. He doesn't want to get arrested. "If a friend of mine wanted some, I'd sell it to him," he said. "Not to a stranger." Muhammad has tumbled from Providence College to the Providence Hotel, a $10-a-night flophouse on the Bowery. He put some books in order and a doubtful look came across his face. He did not pretend to have any answers. "I'm not standing here and saying I'm outside of the problem," he said. "Maybe I'm the cause of the problem. I don't know. Maybe I'm the cause of it." The Fighter: 'People Stay Zombies For a Long Time' The Power of Hope group therapy session began at 10 A.M. Jamie Holder, the group leader, talked about the recovery process: "It is as complicated as the relapse process. Beth, you've spoken of what pressure you're under from your mother and your brother -- 'Are you still on that thing?' " "Yes," Beth Griffin said. "They want to know am I well yet." Her mother, she said, kept telling her, "I hope you'll be off methadone soon so I can put you back in my will." When the hour was up, Ms. Griffin headed for the East Village. She is 36, with frizzy blond hair. There are scars on her face; once when she was on speedballs she cut her face open with a razor because she thought there were spiders and worms beneath her skin. She trudged up the three flights to a studio she shares on East 9th Street. She does her art there, collages and paintings built around words and numbers. After a while, she went over to the Margaret Bodell gallery, where she had recently had a show and sold some of her work. "I'm starting to get a little following," she said. "Most of my life I've had really good jobs and stuff. More than anything else, I want to support myself again." She grew up in Laurence, S.C., where her father ran a gas station and her mother was a secretary. She graduated from the Ringling School of Art in Sarasota, Fla., and became an art director at Dancer Fitzgerald Sample in New York, working on Luvs diapers, Wranglers, Almond Joy. She said Advertising Age anointed her one of the 10 brightest young people in advertising. She butted heads with her boss and quit after nine months. Her resignation letter said, "Enough." She modeled for art students and sculptors, and then did typography for ad agencies. In 1988, she went with a friend to the Mars Bar in the East Village. Her boyfriend had just left her. She had had an abortion. Her parents had just divorced. At the bar, her friend asked her, "You want to do some?" In the bathroom, Ms. Griffin snorted half a bag of heroin. The first thing she did the next day was go out to get more. In four months, she knew the face of addiction. For nearly four years, she only snorted heroin because needles terrified her. But in time, to get a better high, she began to shoot. In the bathrooms of some of the city's best-known ad agencies, she shot up. Her sister, Laura, a drug- and alcohol-abuse therapist in South Carolina, tried hard to get her off. Heroin was more persuasive. Three times she quit, but it didn't last. Her life traced the familiar downward path. In December 1993, she looked to methadone and hoped it would be a lamp to another life. "When I came to the clinic I felt about as bad about myself as you could feel without killing yourself," she said. She kept taking Valium and Xanax. Even without pills, her dose of 90 milligrams a day knocked her out. Mainly, she slept, often 18 or 19 hours a day. Two years later, her sister was killed by a car while jogging. The driver was a lawyer high on drugs and alcohol. Ms. Griffin contemplated taking her own life. She sought therapy and took sedatives. The world moved on, while she slept. "I was a zombie for like four years," she said. "That is the dirty secret of methadone -- a lot of people stay zombies for a long time, for years. Not until you get below a certain dose does the fog lift." Methadone, she said, has saved her, but the drill has grown old. "I'm sick of being a slave to methadone," she said. "I'm sick of going down there and seeing all the same old faces." If Ms. Griffin has a criticism of the program, it is that no one ever pushed her to get off. "I know a lot of people who told them they wanted to come down in their dose, and they would say, 'We don't think you're ready,' " she said. DeLuca, at the Lower Eastside methadone clinic, said perhaps 20 people a year get off methadone there, though patients say far fewer truly do. Methadone is a psychological crutch as well as a physical one. It is something going in the body, day after day, a palliative routine that is hard to shake. Ms. Griffin said it took her own initiative for the clinic to start reducing her dose a milligram or two a week in pursuit of getting off. By Thanksgiving, she was down to three milligrams a day. She was feeling some withdrawal symptoms, but with her dose so low, it was as if she had been rebuilt. "It's like I'm on a faster speed setting," she said. "I do in a day what I did in a month." She lives with a cat named Amtrak in the Times Square Hotel, a single room occupancy hotel. She plays the piano in the lobby almost every morning. She was on welfare for about two years and is on S.S.I. now because she was classified with a psychiatric disability after her sister's death. She has been painting a lot, and hopes one day to live off her art. Soon she was planning to drink the red liquid for what she hoped would be the last time. She was going home for the holidays and would be gone a good three weeks. She didn't want the methadone rope pulling her back. On Wednesday, Dec. 2, Ms. Griffin drank a one-milligram bottle of methadone. It was her final dose. The removal of methadone from her life led to a nightmarish week. She found herself waking up by 4 A.M. She was achy and twitchy. Every second seemed like an hour. She felt old yearnings for heroin. On Sunday, she dragged herself down to the Museum of Modern Art. She stayed exactly 17 minutes. "I had no attention span," she said. As the days passed, she perked up somewhat, though she remained jittery and restless. "There are times I feel I can't get through this," she said. When they go off methadone, ex-addicts often feel a profound sense of loss. State rules allow six months of post-methadone care at the clinic. And so she will continue to go there. She will give her weekly urine sample and see her counselor. A few weeks ago, she wrote down some ramblings about methadone: "For me it was impossible to jump from dope life to straight life. I needed the gray shades of methadone in between. Dope life and straight life are as different as animals being in a cage or out in the jungle. I'm not sure which one is really 'free' but it takes a while to switch from one to the other. Without methadone, chances are I would be dead now."