Pubdate: Thu, 07 Oct 1999 Source: Casco Bay Weekly(ME) Contact: http://www.cascobayweekly.com Author: Al Diamon REEFER REFERENDUM Is Marijuana Good Medicine? And Is The Ballot Box The Best Place To Decide That Question? It was 1990. A house on Sherman Street in Portland's Parkside neighborhood. A drug deal was about to go down. "Betty" (the real names of those involved have been changed at their request) waited in the car while her husband, "Rick," went inside. "Were the cops watching the house?" Betty remembered thinking. "Would we get busted? We were buying it through the friend of a friend, but we were worried about how safe it was. Was it laced with something? "Everybody involved knew it was illegal. But it's like a starving person stealing an apple. We loved [Virginia] and we wanted to give her a shot." "Virginia" is Betty's sister-in-law. She was 27 years old and suffering from ovarian cancer. Chemotherapy had left her with intense nausea and no desire to eat. She was losing weight as the chemo and the cancer ravaged her body. One day, in her doctor's office, while hooked to several IVs, Virginia discussed her deteriorating condition with another patient, an older woman. The woman listened sympathetically, and then asked, "Have you tried pot?" Virginia was "totally surprised," according to Betty, but she began seriously considering the idea. After researching the matter, she decided she had nothing to lose. Rick and Betty volunteered to make the buy, even though neither smoked pot. "Once you stop eating, it starts a downward spiral," Betty said. "We were worried she was going to die. So we made the big score." Before she smoked marijuana, Virginia had "no interest in food," Betty said. "After smoking, she was interested enough to eat whatever she wanted." The nausea vanished, her appetite returned and the weight loss stopped. Today, Virginia is alive and healthy. She doesn't smoke pot or use other illegal drugs. But she doesn't dare to speak out about the medical benefits she believes she received from marijuana because some family members hold jobs that could be jeopardized if it became known she had once smoked dope. It might not be that way much longer. On Nov. 2, voters will be asked to legalize the use of small amounts of pot to treat a handful of illnesses, including cancer, AIDS, epilepsy, multiple sclerosis and glaucoma. The proposed law was drafted by a well-funded group called Mainers for Medical Rights, which is closely affiliated with Americans for Medical Rights, the California organization that spearheaded similar successful referendums in that state, Alaska, Arizona, Colorado, Nevada, Oregon and Washington. If approved, the bill would allow doctors to recommend - -- but not prescribe -- the use of pot for treating medical problems such as severe nausea, strong seizures and debilitating muscle spasms. Patients would be allowed to possess up to 1.25 ounces of marijuana. Or they could grow up to six plants, no more than three of which could be mature at any one time. The proposal on the ballot has some serious blind spots. It does not specify how patients would obtain the drug or the seeds to grow it. That means Betty and Rick would still have to engage in illegal activity to obtain pot for Virginia. Nor does the measure alter federal law, which would continue to classify marijuana as illegal. Although the wording of the ballot measure attempts to shield physicians who advise their patients to use the drug from federal sanctions, such as the loss of their authority to prescribe medicine and the revoking of their Medicare and Medicaid eligibility, many doctors and law enforcement officials say such punishments would remain a serious legal threat. In spite of those shortcomings, lots of people see the referendum as a chance to make a real difference in the lives of those suffering from serious illnesses. But the patients themselves are often reluctant -- for obvious reasons -- to speak out in their own behalf. Poster Children Although it's not hard to find folks who've used pot to treat the side effects of chemo, wasting syndrome from AIDS and other illnesses, the campaign to legalize medical marijuana in Maine is sadly lacking in spokespeople with firsthand knowledge of the issue. With one exception, those who say they've been helped by the drug refuse to allow their names or photos to be used for fear of the backlash. "People are afraid to come out in support," said "Bob," a former Portland resident who now lives in another state and who asked that his identity be kept secret. "You're afraid you'll be branded." In 1986, Bob's wife, "Mary," was diagnosed with multiple sclerosis. The disease caused severe spasms that rendered her helpless to feed herself or meet her other basic needs. Her doctors prescribed drugs to control the spasms, but those medications proved ineffective. Bob heard from an acquaintance that marijuana might help, but Mary was "really opposed to it." Finally, in desperation, she tried a joint. "Suddenly her hand wasn't shaking anymore," said Bob. "The first time I saw it, it was almost like a miracle." Mary kept her illicit drug use a secret from everyone except her husband and a family friend who grew the pot she used. "She was so embarrassed, she never told anyone," Bob said. Nevertheless, she continued smoking pot for about two years, until the MS became so advanced that she had to enter a nursing home, where she died in 1993. "It really changed my view about how ridiculous the laws are," said Bob. "There's so much hypocrisy about that." Mike Lindey isn't afraid to admit he used marijuana. Between 1995 and 1996, the 67-year-old retired veterinarian from Freeport underwent four operations for bladder and prostate cancer, followed by intensive chemotherapy. He lost more than 40 pounds and was suffering from anemia. "I got myself in a sorry state after three months," he said. "I was so down in weight and weak, I wasn't functioning well. I was essentially toxic." Lindey's doctor prescribed Marinol, a synthetic form of THC that is the active ingredient in marijuana. Marinol comes in the form of a pill. For many patients suffering from nausea, the medication never gets absorbed before it's vomited up. For others, its effects are felt only after an extended period of time. For Lindey, it simply didn't work. Friends suggested he try the real stuff. After just "two long puffs," he felt better. His nausea soon abated and his appetite returned. For the remainder of his treatment, Lindey medicated himself twice a day with small amounts of pot supplied by friends. Today, he's fully recovered from cancer and no longer uses marijuana. "There were no side effects, no addiction afterwards," he said. "None at all. That never was an issue. "It seemed to be almost the perfect drug." Not according to the state's medical establishment. No Inhaling On Sept. 17, the Maine Medical Association's (MMA) governing body met in Bar Harbor to consider a resolution opposing the marijuana referendum. The original draft of that resolution was unrelenting in its reefer-madness-style criticism of the ballot question. It said there was "no scientific basis" for using pot to treat some diseases, even though the National Academy of Science's Institute of Medicine released a study in March stating there was strong evidence the active ingredient in pot was helpful in treating ailments associated with AIDS and cancer. The resolution claimed marijuana is "addictive and a gateway drug leading users to frequently use stronger illicit and harmful drugs ...." That statement also contradicted the findings in the Institute's study. The resolution charged the proposed law would require doctors to recommend pot, a claim that even a cursory reading of the document reveals to be false. After hearing from local and national experts on medical marijuana and engaging in an extensive debate, the MMA finally approved an amended statement opposing the referendum for just two reasons: 1) Not enough research had been done on the subject, and 2) there was no way under the proposed law to be sure of the purity or strength of the drug patients would receive. "We did try to focus on what we felt were the most important aspects and leave out the distracting issues," said Dr. Katherine Stoddard Pope, the chair of the committee that drafted the revised resolution. "We're not opposing [medical marijuana] if it's studied appropriately .... The lack of scientific data was really the central issue for the MMA." Dr. John Garofalo was one of the authors of the original resolution, and he still supports many of its rejected arguments. Garofalo cited two patients of his with MS who he suspected were using marijuana. Over time, he said, what "started out as treatment became recreational .... It is a gateway drug in terms of leading to other types of substance abuse." Overall, the state's doctors seem unimpressed with the Institute of Medicine study and unmoved by its call to allow patients with serious illnesses to smoke marijuana now. "There's not enough significant research," said Dr. Larry Harcourt, a medical ethicist. "At this point, it may be premature." As for the suffering their hard-line stand may cause for current patients who might benefit from the drug, the physicians are uneasy but unmoved. "Clearly, that's the most difficult issue," said Dr. Ronald Blum, a member of the MMA committee that revised the resolution. "If a patient is close to terminal, there might not be unreasonable [medical] concern [about smoking marijuana], but the doctor is still liable." Marijuana Maverick As for doctors who worry more about their patients' health and comfort than their insurance premiums and legal bills, they're rarer than pot plants in public gardens [see "Politics and Other Mistakes,"]. One of the few physicians who openly favors using the drug to treat some diseases is Dr. Owen Pickus, a Portland oncologist. "I'm not happy with patients taking a drug that's not properly monitored," Pickus said. "I have no idea what they're getting. But there's no question I've seen patients with cancer, HIV, glaucoma that say the only thing that works for them is marijuana. There's not much I can say about that." Ironically, Pickus is opposed to the referendum, because it leaves physicians caught in a legal and moral tug-of-war between the needs of their patients and the requirements of federal law. Instead, he supports efforts to convince Congress to approve national legislation legalizing the use of medical marijuana. Pickus also wants increased advocacy to educate his peers about pot. "Doctors are terrified of drug use," he said. "We need to change people's thoughts about the way they think about drugs. Nothing we've done so far has stopped the [illegal] use of drugs. We need to rethink. We need to stop lumping all drugs in one giant category." Many experts predict that within five years there'll be new methods for administering marijuana to patients, methods, such as inhalers and patches, that will allow doctors to control the dosage. Once those products are developed and approved, Pickus said many of the "repetitively stupid arguments" against prescribing pot will vanish, and the drug will become no more controversial in the medical community than morphine or tranquilizers. But even if the initiative passes and medical research advances, little is likely to change in the state as long as most doctors fear the repercussions of recommending that their patients smoke dope. "It's unlikely the vast majority of physicians will be affected by [a state law legalizing medical marijuana]," said Dr. Pope of the MMA, "because the vast majority will not advise its use. There may be some who'll advise it, but it's doubtful the majority will participate." About the best most people with serious illnesses can expect from their physicians is a don't-ask-don't-tell attitude. "On two occasions in the Legislature, we have testified that we have great compassion [for] patients undergoing chemotherapy and those with wasting syndrome from AIDS," said Gordon Smith, executive vice president of the MMA. "It's not going to bother the doctors of Maine if patients use marijuana." As long as the doctors of Maine don't have to help them. The Politics Of Pot Polls show most Maine people are far ahead of their physicians and elected leaders on the issue of medical marijuana. Two statewide surveys conducted in September indicated strong support for the referendum, with over two-thirds of those questioned favoring the measure. But those numbers aren't reflected in the positions of the state's congressional delegation. Only Rep. Tom Allen dares to admit he supports such a modest step as allocating money for additional research into pot's potential benefits in treating illnesses. Congressman John Baldacci and Sens. Susan Collins and Olympia Snowe all say they oppose such spending because pot is dangerous, a difficult argument to refute without the scientific investigation they refuse to fund. The state Legislature has been more receptive to the needs of those who could benefit from medical marijuana. In 1979, lawmakers approved a measure allowing chemotherapy patients to obtain pot from the National Institute on Drug Abuse. The law was renewed in 1983, but the federal agency never supplied the needed medication. The statute has since expired. In 1991, a medical marijuana bill similar to the one on the November ballot actually passed the state House and Senate, but was vetoed by then Gov. John McKernan. In 1994, the measure was withdrawn because McKernan again promised to veto it. In 1997, the bill won overwhelming support in the Legislature's health and human services committee, but died on the House floor. The bill's defeat convinced supporters of medical marijuana there was little likelihood the Legislature would change the law. They promptly decided to launch the current referendum drive, prompting opponents to new extremes in their attacks on the proposal. "This is nothing more than [an attempt] to soften people's attitudes toward drugs -- to make children smoke marijuana," said state Rep. Glenys Lovett of Scarborough. "It's a hidden agenda." "It was brought before the voters because other people chose not to deal with it," said state Rep. Michael Quint of Portland, who co-sponsored an earlier medical marijuana bill. Quint admitted the bill is "flawed" in its failure to deal with a distribution system for the drug and a lack of clear legal protections for doctors. But, he said, "This is the only avenue they have to require people to take a look at it." "Ideally, Congress would pass a law saying stop this foolishness," said state Sen. Anne Rand of Portland, the sponsor of the 1997 bill. "But it's not politically wise, because you'll be labeled soft on drugs." That fear of being branded as someone who condones smoking pot extends well beyond the political spectrum. Many organizations with a stake in the outcome of the medical marijuana debate have kept a low profile in the debate. When pressed, they've issued halfhearted statements that are heavy on ambiguity. The Maine Hospice Council, for instance, has called for more research into "the medical effectiveness of crude marijuana." If there's sufficient scientific data to merit using the drug to treat dying people, the council favors making pot available by prescription, a move that would require a change in federal law. Where does that leave people who are suffering right now? "It's up to an individual," said Kandyce Powell, the council's executive director. "People can acquire [marijuana] if they see fit." At Peabody House in Portland, a lodging facility for people with AIDS, the organization's official position on the referendum is equally murky. "While not specifically endorsing The Maine Medical Marijuana Initiative," reads a written statement from the agency's board, "Peabody House supports 'prescriptive access' to marijuana, and encourages individuals to exercise their right to vote as they see fit." A source said the board was uneasy about supporting the measure because it required people to obtain the drug illegally. "We're government funded," said the source. "Our hands are tied on this." One of the few organizations that doesn't seem afraid to publicly back the referendum is the Maine Civil Liberties Union. While acknowledging the initiative doesn't address the problem of how patients will get the drug, Sally Sutton, the MCLU's executive director, said, "It's a step in the right direction .... Even this change in the law goes a long way toward giving people permission they wouldn't otherwise have." The Weeds Of Crime If there's any group that's unified in its opinion on the pot referendum, it's the law enforcement community. From local cops to county district attorneys to the federal prosecutor's office, they're uniformly against it. But few are as rabidly opposed as Jay McCloskey, the U.S. attorney in Maine. "The referendum is a ruse to promote the legalization of marijuana," McCloskey said. "It will promote the widespread use of marijuana. It will make it de facto legalized by making it impossible to prosecute." McCloskey also believes medical marijuana will send "mixed messages" to teenagers about drug use and will increase drug abuse by adults. As for pot's value in treating some diseases, he doesn't buy the claims. "Smoked marijuana is unlikely to have any medical value," he said. Geoffrey Rushlau, the district attorney in Sagadahoc County and the president of the Maine Prosecutors Association, said it's his opinion that if the referendum passes, it will cause legal confusion, because many pot smokers will claim they are using the drug for medical reasons, even though they haven't been diagnosed with any of the diseases mentioned in the ballot measure. He said even those with legitimate medical problems may use marijuana for recreational purposes on occasion, making it difficult to decide when to prosecute. Police officers say a medical marijuana law will make it tougher for them to make drug busts. "It doesn't give me a lot of guidelines as to who can have [pot]," said Joseph Rogers, the chief of police in Hampden and the president of the Maine Chiefs of Police Association. "If they say, 'I've got glaucoma,' now what's an officer going to do?" David Pickering, the police chief in Cape Elizabeth, said busting someone for possession of marijuana will become more difficult and time-consuming if the initiative is approved. "There'll be more follow-up," Pickering said. "It'll take a detective off the street and have him checking to see if some doctor recommended this. Maybe what we'll need is a state registry." Attempts to establish such a registry of medical marijuana users in California have so far gone nowhere because many patients claim such a listing would violate their right to privacy. As a practical matter, though, there probably won't be many cases in which people with serious illnesses get hassled by police for smoking dope. One big reason is that local cops already often overlook such violations. "Even in small towns, where police knew the person had a terrible illness, they just let it go," said Sen. Rand. "Technically, that's not legal either, but there's widespread tolerance for the medical use of marijuana." Most cops won't admit that on the record, but they do say cases involving relatively small amounts of pot are rarely prosecuted by DAs. If the referendum is approved, the likelihood of prosecution would become even more remote. "It would probably be difficult to get a complaint in district court on that," said Pickering. "The courts are overburdened with offenses that are more important than that." Pushing Pot's Potential The groups spearheading the referendum drive for medical marijuana choose their words carefully in order to avoid being tagged as pro-dope. They cite medical evidence. They discuss legal safeguards. They tailor their message to appeal to the strong libertarian streak in Maine voters. "We're trying to take the government out of the process between doctors and patients," said Craig Brown, campaign manager for Mainers for Medical Rights. "It's really putting medical decision-making where it belongs, and out of the realm of reefer madness." "It should be left up to the voters," said Gina Pesulima, spokesperson for Americans for Medical Rights in Santa Monica, Calif. "Let's see who voters trust in making this decision." What Brown and Pesulima are less comfortable talking about are the legal and medical problems inherent in the initiative. Both shrug off questions about how marijuana will be distributed. "We are working toward changing federal policy," said Brown, "but until that happens, we think people with AIDS, people on chemotherapy for cancer shouldn't be denied the use of the drug." "We hope the federal government changes its own law as more states change their laws," said Pesulima. It's also significant that advocates for the measure are careful to mention AIDS and cancer as often as possible, but rarely say anything about glaucoma and other diseases mentioned in the proposal. That may be because most studies, including the recent findings of the Institute of Medicine, show marijuana is most effective in treating the side effects of chemotherapy in cancer patients and wasting syndrome associated with AIDS, but far less useful for medical problems associated with other illnesses. "The medical evidence is that it does provide some benefit," said Brown, "but other alternatives are equal or better. It calls for more study." "We're not saying it's the best medicine all the time," said Pesulima. "But doctors have a similar difference of opinion about morphine. It should be an option." For all the rhetoric about health care, it's obvious the Maine referendum is aimed less at providing pot to patients than at taking political potshots at Congress and the federal Food and Drug Administration. The November vote is simply one step in a carefully orchestrated campaign by Americans for Medical Rights to increase the pressure on Washington to add marijuana to the list of drugs that are available by prescription. Until that happens, no state law is likely to make a significant difference to the Virginias, Marys and Mikes who'll still have to break the law to deal with their diseases. Waiting For The End It was 1992. A house in the Portland suburbs. Illegal drug use was about to occur. Betty and her father, "Don," were sitting in his kitchen. Don, 51, had been diagnosed with terminal lung cancer. He'd stopped his chemo treatments, but the nausea and weight loss persisted. He had become depressed, often talking about how he would miss seeing his future grandchildren. He knew what marijuana had done for his daughter-in-law, Virginia. He decided to try it. Once again, Betty volunteered to obtain the pot, although this time, she knew of a friend who grew his own. No fear-filled trips to Parkside. No worries the crop might be laced with other drugs. "It's ironic," she said. "He had raised me not to do illegal things, but also to take responsibility. It was honorable. I look back on the time we were doing it with a lot of fondness. It gave us a last chance to bond. "It allowed him to have a few good meals in between the bad bouts. It got his hopes up, too. I can't imagine where he would have been if he hadn't had the chance to try it. "To make judgment calls, to just say there are other chemicals out there, to say you can't try it, I don't understand. Everyone should be given a chance." Don died in 1993. - ---------------------------------------------------------------------------- Al Diamon is CBW's political columnist. - ---------------------------------------------------------------------------- SIDEBAR On The Fringe Mainers for Medical Rights (MMR) isn't the only group in the state seeking to legalize the use of marijuana to treat illnesses. There's also Maine Vocals, a loose-knit organization dedicated to promoting pot for personal use. The two campaigns have little in common -- and little good to say about each other. MMR is a well-funded machine that gets its marching orders from Craig Brown, a former top aide to ex-Congressman Tom Andrews. Maine Vocals is a ragtag outfit, best known for staging the annual Hempstock festival in Starks. Its frontman is Don Christen of Madison, whose claim to fame is his 1993 arrest and conviction for handing out marijuana-laced brownies at a public rally. From the beginning of its push to legalize medicinal pot, MMR has made it clear it wanted nothing to do with Christen's crowd. "We were told to stay as far away from them as we could," said one of MMR's organizers in 1997. "They're political death." Christen is equally complimentary, labeling MMR's initiative "a piece of garbage. It won't work. It can't conceivably work. People won't do it. "They just want to send a message to the feds, and that's bullshit." For the past several years, Maine Vocals has tried, without success, to get its own marijuana referendum on the ballot. That measure differs from MMR's proposal in several ways. MMR's plan limits doctors to advising their patients about using pot to treat a few specific illnesses, such as AIDS and cancer. The Vocals' bill ignores federal law by allowing physicians to prescribe the drug "for any illness for which marijuana can provide relief." MMR limits the amount of pot a patient can possess to 1.25 ounces or six plants. The Vocals would allow an unlimited supply. MMR is conspicuously silent on the subject of where the marijuana would come from. Maine Vocals would permit people to grow their own and would set up a state board to develop a distribution plan for those who couldn't do so. In short, MMR is the mainstream, limiting its efforts to legalizing marijuana for medical uses. Maine Vocals is on the fringe, more interested in making pot widely available for almost any purpose. For this group, medical marijuana appears to be almost an afterthought. When Vocals member Harry Brown, on whose farm Hempstock is held, was busted recently for possession of pot, he told the Lewiston Sun Journal he used the drug medicinally to treat allergies, sleeplessness and lack of energy. But Brown said he did not support MMR's referendum because "Medication should be a point between people and their doctor." While Christen usually steers his discussions of pot to the economic benefits of hemp production, he admitted in a 1992 radio interview that his primary reason for becoming an advocate for the legalization of medical marijuana was "because I like to smoke it." - --- MAP posted-by: manemez j lovitto